Month: September 2008

  • of horses and ACT scores

     
    Ran into a checkout lady at Walmart last night who I went to high school with.  Wow, this next spring will be 30 years.  If I run into her again I might give her my phone number and say Hey, let's go to the reunion.  I've never been to one, and she's been in another state most of her marriage.  We had lockers next to each other one year.  Not exactly friends, but not enemies.  I was so withdrawn back then that I don't recall a whole lot, but she remembered that I was a 'brain' (in spite of the fact that I was nearly failing high school) and asked if I became a doctor or anything.  Wow.  Would anybody really actually care?  I was surprised.  But she seemed cool about it all.
     
    On the way home Scott asked me a bunch of questions about high school.  I tested out in the 3rd percentile but still fell through all the cracks because no one knew I had Asperger's, and I was unresponsive and reclusive and didn't have a clue what the testing meant because no one really took the time with me.  They just assumed I was sullen.  Back then I still wasn't able to look at people in the face very well, yet I had a significant attitude problem.  Might be kinda funny going to a reunion and seeing what a few people think of me winding up having been on the autism spectrum all that time.  Explains a lot.
     
    5 years after high school I retook the ACT to get into college and scored 32 or something, without any coaching or practicing.  That or it was 33 or 34, but I'd rather err on the side of caution.  I pretty much felt like I bumbled my way into college.  Back then I was still so spacey with the Asperger's, wasn't disciplined to focus and connect the dots, and unfortunately wound up getting an advisor that was fired a semester later.  I free floated through most of my degree program, looking at classes like a big smorgasbord.  It took years for me to learn to connect the dots, but I soaked it all in like a sponge along the way.  Scott was aghast last night to find out that I'd scored so high and STILL managed to fall through nearly every crack in the system with no clear direction.  It's funny how long you can live with a person and never realize, eh?  Yes, I'm one of those super smart people.  I'm a few steps away from being Rainman.  (There but for the grace of God go I.)  But because it took me so many years to learn to communicate in this marriage, seriously, it just wasn't evident.
     
    I don't care any more about test scores, but I remember taking the GRE to get into grad school, and I scored super high on two of the tests and below average on the third.  They nearly didn't let me into grad school because I failed the 'logic' part, but the other two were so high that the two old professors muttering to each other across the room where I couldn't hear actually acted like people do on tv.  Scratched their heads, raised their eyebrows, let out one of those big sighs with puffed cheeks that means *wow*....  I never really understood that I'd outscored almost everyone else there on those two tests.  I still don't know what it all means.  No one has ever sat down with me and explained it.  Yes, I scored high, but what does it ~mean~?  I don't even understand how I understood how to answer the questions.
     
    Curiously, I went on to learn how to administer psychological testing and write up evaluations in my first masters degree program.  That was the first time someone told me I'm 'unusual'.  One of my teachers had been testing people for 30 years and had never seen anyone like me.  He said if he hadn't met me in person and could see for himself that I'm perfectly mentally healthy, he'd have written me up as schizophrenic, based on the psyche tests alone that we took as we learned to wield them.
     
    THAT is what it's like living with Asperger's.  That's what it's like being on the autism spectrum.  I managed to break through the barrier of social interaction and communication on my own, without a diagnosis or psychological intervention for many years.  I think more of us manage to do this than is realized.  We *know* stuff.  We can take information and turn it into cool stuff, some of us more on an 'eventually' scale of time.  To some people it might seem useless that we can be so detail oriented, to others we are cool.  But until we learn to verbalize it on a level other people can 'get', some of us fall through a whole lotta cracks.  Until intelligence probability is taken as seriously as social skills when average parents are freaking out that something is wrong with their autistic kids, this world will continue to miss out on some spectacular problem solving opportunities.
     
    Imagine where I could be with my life if someone had taken my testing seriously enough to spend some quality time helping me and my parents plan out an education and figure out how to get the financing.  I did it all absolutely *on* *my* *own*, because I was socially deficit and fell through the cracks.  I think our public education system is what's deficit.  I think it is set up to fail.  But who am I to say, I was just this weird kid who thought it was funny to get others to cheat off me and flunk tests.  And now I think the burgeoning view the media is generating about 'catching' autism early is creating a public awareness deficit that is turning autism into the next birth defect or environmental witch hunt.
     
    No, I didn't turn out to be a doctor.  But I'm a good person, a good cook, a good mom, a good wife, and I'm content.  I think the most important thing I have learned in this life is contentment.  If it takes a genius to figure that one out, then there you go.  A few of you out there are completely missing the deeper point to that statement, like be content with who your children are.
     
    I see a few parents blogging here and there about the difficulties of getting a kid with Asperger's into college and keeping them there, etc.  I had a 5 year break after high school, then went to college on my own, and conquered every obstacle by myself.  When I got out of high school I got a job and got married and got divorced, just like a bunch of people do, then asked myself what I want.  I knew I wanted more than the mundane world around me.  Sooner or later we all figure out where we fit.  If you've got an aspie on your hands, sooner or later they'll crave more input.  They'll figure out sooner or later where their niche is if you quit pushing.
     
    I compare myself to a horse.  I see that some people handle horses well, others don't.  Horses can be high strung, anxious, rebellious, strong headed, distrusting, and even mean, depending on their experiences in life.  A good handler knows how to get the best out of a horse without having to treat the horse badly.  A good handler understands how the horse's mind works, and acts in a way the horse understands in order to get the behavior he or she wants out of the horse.  I think people on the autism spectrum are a lot like horses.  With good and patient handling, we eventually learn to respond well, but it takes time.  If you've got a horse on your hands that simply responds to all commands on cue without showing any sign of intelligence whatsoever, you've got a 'broken' horse.  That is what aspies turn out to be when they are put through programs trying to 'fix' them and force them to respond to social cues.  When how the horse responds becomes more important than the horse itself, you've got a sad situation on your hands.  Many smart horses are molded into dumb horses because all that is wanted is certain social behaviors out of them.
     
    Some people brag about being good with animals.  I think it's nice when someone brags about being good with aspies.  Stop grading the behaviors and love the child.  Are you a dog person or a cat person?  I hear it all the time.  There are magazines for horse and bird owners.  There are people who raise odd things like possums and wolves and snakes.  If people could learn to see different personality types the same way they do animals, enjoying what is unique about them, I wonder how much the world would change.  It intrigues me that aspies can behave almost the same way someone's pet does, on a more basic automatic in the moment level, but the aspie is treated worse for it while the pet is loved because it's cute or something.
     
    Maybe that's why I don't care about test scores.  I'm not cute and lovable because I'm not all furry or scaly or feathery or something, so I see no reason to perform for any other kind of attention.  You know why I'm not a doctor?  Besides having absolutely no moral support whatsoever as a person who wouldn't respond on cue, I thought it would take too long.  Too long for what?  I had no sense of time!  I wound up spending *more* time in college than I would have if I'd gone for a medical degree.  But plain and simple, that was it.  I actually wanted to go into the medical field, and I bet I'd have been pretty good at it, but I had no idea what to expect and how to plan and no one going over it with me.  There you go.  I'm a brain, and I'm not a doctor.  And I could tell you the disdain I have for House.
     
    So the wild horse went galloping off toward the mountains, untamable and carefree.  And then woke up one year and realized she was a human.
     

  • 15 things

    I'm so out of the loop I'd never know if I were tagged or not, but I'll just go ahead and do this.    15 things about myself!  That you probably never wanted to know!  That you are going Oh, crap, there she goes again....  heh heh.

    1.  My Crazy Jaizzy's fantasy football team is 2-0 right now.

    Im_too_hot

    2.  Jaizzy is my pet chicken, named after a xangan who once told me it's French slang for "I'm confused."
     
    cjs
     
    3.  Child abuse is a family pattern that goes back 4 generations on my mom's side.  Back then it was called 'discipline'.  My mother used to beat me till she could no longer lift her arm.
     
    z72429635
     
    4.  I have a problem with 'pretenders', people who hold onto a belief system and behave contrary to it.  Like Christians who are cruel to other people via anything from neglect to gossip to hateful confrontation.
     
    ghost2
     
    5.  I'm not always that serious.  I own nearly everything Weird Al ever put out.
     
    weirdal
     
    6.  I don't drink.  I tried one year, and went into liver toxicity.  Not fun.
     
    pukepnkn
     
    7.  Halloween is my fave holiday, autumn is my fave season.
     
    hal7
     
    8.  I love finding cool renderings that other people do.
     
    gothwonka
     
    9.  I like silly movies.
     
    butabi
     
    10.  I don't get along very well with others after a certain length of time.  Most people don't realize it's the Asperger's.  I didn't realize it myself for years.
     
    wolf
     
    11.  I hate it when people feel sorry for me.  I've been dealing with chronic illness and severe pain for 20 years, and I have to be tough to survive.  Making a big deal out of feeling bad for me only makes me really depressed, so I ignore people thinking they're being nice about it.  Then they tell me I'm mean and cruel because I don't respond correctly.  So no offense, but I have a lot more on my mind than social ettiquette when it's all I can do not to curl up and look gross.  And to all the people who've told me I look terrible when I turn white as a sheet and nearly faint from overwhelming pain in public places, and all the people who've said "My (relative) died of lupus"- just don't, ok?  I ~know~.
     
    4outof5_Thumbnail
     
    12.  This is true.
     
    z131329672
     
    13.  My original heroic icon is Stephen Hawking.  I love the guy.  I thought he was the bomb even before I was diagnosed nearly 20 years ago.
     
    shawking
     
    14.  Beaker is my fave muppet.
     
    beaker
     
    15.  I own a duck.  She's the noisiest pet I've ever owned.  I love this icon.
     
    shutup1
     

  • 'here it is' survey

     

    Do you think your mature?
    I suppose it would be immature of me to say I wish you'd spelled it "you're".  I realize that's my own obsessive autistic attention to detail in the big safe world of language usage and spelling rules, not yours (now spelled correctly in another usage form).  I wonder if 'my kind' are the ones who obsess over dictionaries and stuff.  I find that comforting.

    Have you kissed somebody in the last 2 weeks?
    Even better!  Scott told me I'm cute!  *fainting*  And don't worry.  He can't spell for beans, either.  He spelled 'depoist' in his checkbook for years until he met me.  I love him anyway.


    Who was the last persons house you went to besides your own?
    Scott has warned me not to go into the chicken house because there is a big, black spider in there.  I heed his warning.

    What’s on your mind?
    I'm thinking this is a virus, and I'm not happy about it.  You know how it is, wobbly, chills, time passing in weird ways.


    Listening to music?
    The sweet music of Sunday football, the commentators, the crowd, the funny commercials.  ~/~  Ok, now it's the music of pounding on the roof on a Monday afternoon.  I tend to take lots of breaks during surveys.


    Anything annoying you right now?
    You are annoying me greatly with typos, punctuation errors, and dangling sentences.



    What did you do last night?
    This question always annoys me.  There are 3 questions that annoy me more than any others.  Do I sing in the shower, what color are my eyes, and what did I do last night.  I suppose we could look into why these 3 annoy me the most, but it's simple.  The survey maker is either lacking in creativity, or is a federal agent monitoring the internet via crappy surveys.  Or someone's mom.  Or a pervert.  Or an alien from the Caelum Constellation trying to blend in with the myspace crowd.



    Who did you ride in a car with last besides your family?
    What did I tell you?  They're watching us.  You have to be careful what you say in these surveys or big guys in black helmets will knock down your door and tell you to freeze something.  No one has ever come back alive to tell us what they had to freeze.



    Do you have any bruises?
    I will proudly show off what happens when a person goes sliding down a hill.  Those are out now, btw.  Good question, too.  I might just forgive all the things I said about typos and stuff.  The redness is a staple allergy, in case you are wondering.
     
     
     


    What were you doing at noon yesterday?
    At the risk of becoming entangled in a federal investigation, I was watching football.


    How long does it take you to get ready?
    Helloooo, aspie on the other side of the universe here.  Let's take the readiness test, shall we?  I can make really nice full blown from scratch meals in 20 minutes flat, I can head out the door immediately if anyone calls about injury or fire, and I'm so ready I actually go back in time a few seconds ripping my clothes off for Scott.  Anything else, you can wait till you croak off.  I don't care.


    Have you been outside today?
    Let's go see what Scott is up to, shall we?
     
     



    The last text you received on your cell was from?
    It's vital to national security that you not know it was my sister.  She's in special training today on *pfft!*  Ow!  That hurt!  Wait...  I'm bleeding!  Somebody, call 911!  Ahhhhhhh!  It's Marwan!  Run for your lives!  Ok, I know, I know.  I just finished season 4 of 24 in my big 24 marathon that is taking over my life.



    Last movie you watched?
    "Coco Chanel" was on Lifetime last night.  I flipped back and forth between that and the Steelers vs. the Browns.  I know, it seems out of character for me, but I retailed for some time, I'm a little bit into fabrics and stats on international goods and services, and I'm actually familiar with the changing trends in women's fashions over the last several centuries because I'm into cultural anthropology and sociology, as well.  So yes, even though I'm androgynous in my khakis and POTC3 t-shirt, I thought the history behind Chanel was cool.

    Are you wearing any jewelry?
    Cheap Panama Jack shell earrings that look like a cool mimic on shark's teeth or something.


    The last place you went to?
    I had a follow up with my doctor today.  Showed her the cool scar still healing on my knee.



    What color are your bedroom walls?
    Who cares?  As long as I don't see a spider anywhere, any color is fine with me.



    What should you be doing right now?
    Taking a nap.  But Scott told me to watch his tools while he runs back to Lowe's for more boards.


    What do your friends call you?
    Annoying.  I don't generally keep friends very long.  I have a bad habit of being a little too aspie to tolerate.


    Has anyone ever told you they like you more than a friend?
    I've had quite a few hints, yes.  I usually edge for the door and run like mad.


    What did you last eat?
    I hope Scott gets back soon because I'm going to fall asleep right here in this chair.


    Have you ever thought about getting your lip pierced?
    I sorta wanted a tiny gold band around my lower lip for awhile, but I'm a lip picker, and I probably would've played with the band until I hurt myself with it.


    Have you ever thought that you were going to marry a person?
    There are so many answers to this one.  Yes, I really thought I was going to marry a ~person~.  How in the world did I get stuck with this Arquillian?

    arquillian




    Have you ever had your heart broken?
    I'm so not in the mood for this crap.
     
    "Are you a god?"
     
     

     

    What are you listening to ?
    Scott's back.  He's on the roof again.  See ya, I'm going to get that nap now.



    Have any of your friends ever cried on your shoulder?
    Some of them aren't even friends.  I've had total strangers walk up to me and pour out their life stories.  I seem to be really good at listening, like
    Guinan.



    How many people on your top aren't virgins?
    The myspace mentality shines through.  I could care less about other people's sex lives.



    Have you ever kissed someone in front of your parents?
    I'm way too old to even care about this question.  Why am I doing this survey?  Oh, yeah, virus.  Wobbly.  Time passing weirdly.


    Has anyone ever asked you if you had sex or not?
    I'm going to gross you all out.  The first time I EVER had an exam, the doctor actually called my first husband in and asked him point blank if he knew what he was doing, because my hymen was still intact.  Turns out, as I found out a couple years down the road, I'd married a pedophile.  Yeah, nasty.  To this day I have a raging loathing for pedophiles.




    Has anyone ever taken pictures of you asleep?
    Scott says I'm cute when I'm asleep because I'm all snuggled up with my head sticking out, but he's never taken a picture.  It's nice to be called cute when you are nearly 47 years old.



    Have braces?
    I'm ready to scoop out the survey maker's brain with a spoon.



    Are your parents still together?
    Vicodin with a virus is kinda weird.

     
    Conversation with Willy Wonka
     
        
    Does anything hurt you right now?
    Virus.  Wobbly.  Time passing weirdly...


    Is your phone within a meter radius of you?
    Speaking of my cell phone, I finally tossed the old red cover and reinstalled the original blue one, changed the wallpaper to look like I'm going through hyperspace, and turned all my menus purple.  A BETTER question would be how many of you put your cell phone under your pillow so you'll never miss a single text throughout the night?  I know someone who does that, then complains every day that she didn't sleep well. 
     I made the mistake of doing that only once.  I hit the ceiling like a cat.


    Who was your last missed call from?
    I miss nearly every single call that comes in.  I refuse to be a slave to a phone.



    Is there a high chance of you going out to the movies soon?
    The older I get, the more wasted I have to be to tolerate sharing my movie experience with a great big roomful of annoying strangers.



    Are you easily scared by horror/thriller films?
    I internalize EVERYTHING.  I reel away from tension in a show like I've been shot.  It doesn't even have to be scary.  You can imagine how many different tv shows and movies I avoid like the plague.  I can't begin to tell you what watching 6 seasons of a virtually nonstop "24" marathon is doing to me.  I was especially glued to Ike coverage because my kiddo is over that way.  BTW, I was watching the Weather Channel when hurricane Ike tossed Mike Bettes into the bushes, laughed my head off.  They bugged him about that for hours.
     
    TWC Storm Alert - Ike 9-12-08 - Mike Bettes falls
     
     
     
     
     
    If you were given $100, would you spend it, or save it ?
    I kinda feel like I could throw up, but I'm not a puker, so I'm wading through the nausea in this surrealistic weirdness.  The opening Monday night football song was cool tonight.  I love that they do that.  Ok, what was the question?  Gee, a hundred bucks.  I'd probably go to a chiropractor, buy some new footies, and go back to bed.  I feel terrible.


    Where are you right now?
    omg, this was a very disturbing question.  I actually looked around.  I don't even have a fever.  Oh, wait.  I guess I'm sweating.  Ok.


    What are you doing?
    You know how your stomach gurgles around when you're sick?  I'm doing that.  I'm gurgling.


    Hows the weather today?
    Fantastic.  Truly amazing.  Nice and autumny.  Sort of.  It's been weird this year because all the rain created a jungle out there, and we're still lush and rain foresty and very buggy.  But the cooler air today was lovely.



    When was the last time you were truly, completely happy with your life?
    Happiness is a feeling.  It's not a situation.  I was born miserable, I grew up miserable, I have survived miserable.  Happiness, if I could actually believe in such a thing on this earth, would be not feeling sick every day.  Happiness would be being able to joyfully move around in the sun without it killing me.  Happiness would be being glad I could easily eat and breathe and actually run and jump.  But I digress.  Happiness is a state of mind.  It is contingent on a situation or other person being pleasing.  Once that situation has passed, which can easily happen at any second, the happiness is over.  According to our constitution, happiness is a 'pursuit'.  It is something unobtainable and undefinable.  We have the freedom to pursue it, but the more we pursue it, the more miserable we become.  Since I was born miserable, I am free of this pursuit.  My only way out is to remain drugged out of my mind, and I reject that.  I choose NOT to be happy.  I choose to be challenged to grind through life with grit and crankiness.  I choose to rise to this challenge without promise of any kind of 'happiness'.  Because there is no one or no thing on this earth that can *make* me 'happy'.  That is something I do for myself.  I have never been happy in this life to be here, but I have felt invigorated by the challenge.  We are not born on this earth to be happy.  I accept that, maybe not very gracefully, but at least I can look the universe in the eye and say I earned my place in it.


    Could you date someone taller then you?
    Scott let me go with him to Lowe's yesterday to get some boards.   


    How do you feel about your hair right now?
    I was saying the other day that if the Vikes make it to the playoffs this year, I'm dyeing my hair purple, but shadows of doubt are already being cast.



    Do you believe in love?
    I would not know how else to survive my life if I couldn't focus on that.  I've had to learn to be mean and tough just to take it, but I don't think I'd have the will to survive if I didn't have something or someone to love.  It's funny, I knew even as a young kid I'm in love with being alive.  I love seeing the world, I love watching other people, I love figuring things out.  If I didn't have that inside me, the emptiness would kill me.  I tell people in despair to find something, ~anything~ that you love, and cling to it.  Don't let go of loving something or someone, even if you never get it back.  People who survive the hard stuff are the ones who don't freeze up in self doubt and self pity.  We see beyond the pain and trauma to what we love.  This is me on the left in one of my rare outings with one of my sisters.
     
     
     


    How old do you want to be when you have kids?
    I'm enjoying the empty nest thing now.  It's pretty cool to have so much freedom back.



    Is there something that has happened in your past that you really hate?
    I could dredge a few things up, but I think it's pointless.  Hanging onto a list of what I hate is pretty shallow.
     
     

 photo surveybuttonsm.jpg

I've started transferring my survey posts over to Surveypalooza so people coming in from search engines on mobile devices will be able to see the surveys.

surveypalooza

Apologies for the missing vids, another upgrade during the server migration swept through like a scan sweeping through the Enterprise. I'll fix those later, kinda busy...

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