From Which Rocky Horror Picture Show Character Are you like?

From Which Rocky Horror Picture Show Character Are you like?
We're *all* terminal in the end. I'm a 'slow' terminal. I've already lost a niece who was born terminal but lived to 20, in spite of all medical odds. So define terminal here. I was diagnosed 20 years ago, I'm lucky I'm still alive, and I get up and face every day with progressing neurological deficit and severe pain througout my body.
So someone is asking, what would I do if I found out I'm terminal. Well, if a doctor told YOU that you would be completely crippled and blind in less than 20 years if you were *lucky* and didn't go into organ failure first, what would YOU do? I went to college and got my degree. I went on to grad school. I raised a child as a single parent and then remarried and helped raise another child. Every day I prayed that I would live long enough to see my children grown up. Every day I did laundry, made meals, and somehow made it through my day. Recently, just this last winter, I faced that I might die from liver involvement. But here I am, I'm still doing laundry and making meals. Slowly, with lots of rest.
What did I do? I faced it and kept LIVING. I didn't ask 'why me?', because statistically, why not me? Everybody's got something, right? I didn't blame God, I didn't hate my body, I didn't go on big campaigns to fundraise for a cure for my disease.
What did Stephen Hawking do? He helped flip the world of physics upside down. And dang, he's still alive, too. Some of us just won't die.
Being diagnosed with a terminal disease isn't a license to feel sorry for yourself. It's not a 'get out of responsibility' card that says you are now free to smoke and drink and do whatever you want to your poor body. It's not a sign over your head that says you get to go to the front of the line or a free meal. In fact, being diagnosed with a terminal disease is a sure bet that all your friends will fade away because they don't know how to deal with it, and that you won't be able to keep up with the fun stuff any more. So you take a good long look at your life, you learn everything you can about medications and nutrition and how your body works, you have a long talk with God, and you get real with the people around you.
If anyone out there has recently been diagnosed with something scary, bless your heart, but take a deep breath and face it. Have a good cry, have another good cry, and keep moving ahead. Say the things you need to say to your friends and family, on a blog, whatever, and get that safety net around you. Communicate with your medical team, talk to a counselor, and don't be afraid to ask friends and family for favors, and tell them thank you.
Oddly, for those on the brink and about to step over (I've seen this a few times), some feel the need to reassure the ones they leave behind it's ok, even though inside they are scared out of their wits. They can walk up to the bridge with you, but you step out alone. I think that's what we fear most, unless we're so sick that we're glad it's finally over.
Live your lives. 'Terminal' doesn't mean you're done yet.
I just answered this Featured Question; you can answer it too!
1. What is a question that people ask you that always gets on your nerves?
I try to stop at one hot chocolate. I'm getting to where I can handle two in one day if I only do it once or twice a week. Severe caffeine problem.
5. Do you fold your underwear?
I actually googled "compulsively folds underwear" just now and got a whole list of people answering this question in great detail.
My duck is pretty good at phase shifting. You never see how she gets across the yard faster than the chickens running and flying when they're in a panic. The duck is suddenly just there. I think she's rigged up a little portable device like they're always using in Stargate shows. She's probably smarter than Rodney McKay.
9. What was your favorite childhood toy?
We had a severe lack of toys. I bonded with the Monopoly board.
10. Name a sound that disturbs you:
13. Have you ever had the same dream more than once?
And each time I get a little closer to solving the problem of how to land the crippled plane in the dark and driving rain over a big city without killing everyone.No.
15. Name something that made you laugh today.
A chicken chasing a frog is pretty funny.
16. If you were in an emergency situation and you had to deliver a baby, could you do it?
I've had my arm inside a goat, but I swear I would never do that to a human. I'd just go ahead and do the caesarian with my paring knife.
17. What is on your refrigerator door?
18. Name the closest thing to you that is green?
Well, whadayaknow, there's nothing green near me. Guess I'll make the questions green.
19. If someone who didn't know you had to guess your name, what would it be?
I've been called Patricia, Marsha, Jeanine, Brenda... For some reason I'm one of those generic one face fits all people. No one has ever called me Amy, though. I must not look like an Amy. My dad sometimes calls me John. He's getting to where he has to go over the list of his kids' names and pick one, but you'd think he'd get mine right, I'm right at the top.
20. Name something you have to do tomorrow.
I've discovered there is no 'have to' in the world that can't be seriously interrupted by something else, and that any time I think I 'have to' do something, plans abruptly change beyond my control. I expect wild spontaneity at any moment when I 'have to' do something. So for me to say I 'have to' do something, I'm literally jinxing myself and tempting fate and falling for the illusion that is this life.
21. Name a movie you are looking forward to watching:
I'm still finishing up all the Jake 2.0's I dvr'd.
22. Have you ever called 911?
They go Oh, her again. Ok, kidding. It's been awhile.
23. Name something you've heard about women that tends to be true:
I find that they can be pretty territorial, no matter how friendly they seem.
24. Do You Own An iPod?How Much Cheaper Is the iPod Going to Get? - AppleMatters
25. What Was The Last Movie You Watched?Twelve Monkeys (1995)- Original Theatrical Trailer
26. Do Any Of Your Friends Have Children?
Ah, but do I have *friends*?
27. What CD Is Currently In Your Cd Player?
iiO Revolution
IIO - Is It Love (WoW version)
28. Do You Prefer Regular Or Chocolate Milk?
You know how people are going back to the organic stuff and buying fresh raw milk off the farms again? I grew up on that, both goat and cow milk. Good stuff, yes. But you've gotta be on top of it, people used to die from listeria and other bacteria species in milk before pasteurization came along. Raw milk spoils incredibly fast, and you can get really sick from it. *I* have. And be very picky about the jars being sanitized, etc. I ~love~ milk, but I'm immune compromised, and the last time I tried some 'organic' milk from a local farm I regretted it for a week. So be smart, ok?
CBC News In Depth: Food Safety- Raw Milk
29. Has Anyone Told You A Secret This Week?
Actually, someone has told me a really big secret that seems to be less of a real secret and more of a self gossip starter to get attention, and it got so ridiculous that I finally just couldn't take it any more and stopped communicating. I'm not into that kind of crap.
30. When Was The Last Time You Had Starbucks?
We buy the packages at Walmart and make it at home. Much cheaper.
31. Can You Whistle?
I try not to. Not only do I find it incredibly annoying, but I can't believe people actually sit around and talk about it.
32. Do You Have A Trampoline In Your Back Yard?
People around these parts put them in their front yards, makes a real nice eyesore. And then they fly around into other people's yards during tornado warnings. That part cracks me up.
33. Do You Think People Talk About You Behind Your Back?
It's hilarious how many people feel the need to come running to tell me when they do. Um, yeah, let's talk about them behind their backs back at them.
34. What Movie Do You Know Every Line To?
I don't exactly have memory loss as much as memory disruption since the Bell's Palsy (complicated with lyme disease and lupus...). I would have said Star Wars, but I can't say that any more.
Where are 35 and 36?
38. Would You Ever Date Anyone Covered In Tattoos?
40. When Was The Last Time You Slept On The Floor:
I will never sleep on the floor of a hospital waiting room again. I'm not as tough as I used to be.
41. How Many Hours Of Sleep Do You Need To Function?
I functioned for 25 years without sleep. I'm making up for it now.
42. Are You Picky About Spelling And Grammar?
I've been wondering why you're capitalizing all the words in your questions... I'll go back and correct typos in old posts from last year if I run into them, but I really don't care if other people do it. Life is too short to worry about a misplaced comma.
43. Do You Get Along Better With The Same Sex Or The Opposite?
I'm not a people person in the first place. But I prefer hens over roosters.
44. Do you sleep on your side, stomach, or back?
Do you need a picture? This is getting dumb. I spent several years sleeping sitting up. Do you care?
45. Do You watch The news?
I find the news so deficient and repetitive and shallow on ANY channel that I tend to avoid it. If I want to know anything, I hit the search engines, or catch BBC or Chinese news on satellite.
47. Name one place you would rather be right now?
Is it ok if I'm content to sit here? I had a long summer.
I've started transferring my survey posts over to Surveypalooza so people coming in from search engines on mobile devices will be able to see the surveys.
Apologies for the missing vids, another upgrade during the server migration swept through like a scan sweeping through the Enterprise. I'll fix those later, kinda busy...
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