Month: April 2008

  • Me and Willy Wonka, or, How I Learned I'm Aspie

    :edit: Some of the links in this article are no longer viable, sorry about that.

    What am I up to today?  Is it fun? 
    YES!!!!  And I can't tell you.  Too bad.

    Sorry.

    I had no idea what Asperger's syndrome is until fall of 2006, and I learned about it quite by accident.  Up until then, I always saw myself as a freakazoid nerd brain that nobody understood, and I tried very hard to hide my natural self and blend in with normalcy.  That's pretty hard to do when you think the raging debate over the age of the universe (now solved) is more exciting than running into Brad Pitt.

    Because I'm not fond of crowds and noise, and particularly because I assumed this movie would draw a whole bunch of little kids, I avoided seeing Charlie and the Chocolate Factory in theaters like the plague.  And because I'm dreadfully out of whack with the what-is-hip-right-this-second buzz, I failed to rent it when it was first released.

    I like Tim Burton movies, they are cool.  Johnny Depp was ok, too.  Sleepy Hollow and Edward Scissorhands were both pretty good.  But as much as I like Gene Wilder, I wasn't fond of the first Willy Wonka movie.  I couldn't imagine a second one being any better and went on my merry way.

    Then one day, I rented it.

    I liked the beginning.  Really easy to get into feeling the moment.  But what caught my full attention was the calliope catching on fire and the little dolls continuing to sing while they melted.  I knew when I saw that, I would ~love~ this movie, regardless.

    And then Willy Wonka stepped in and just took over.  I had never in my life seen someone so much like me.  Actually, he looks more like my cousin Shelly did in high school (she was prettier), and I'm the polar opposite of well groomed most of the time (I'm more like the Hunter character in Fear and Loathing in Las Vegas).  But everything Willy did was ME.  His reactions, his movements, his enthusiasm, his disdain, his skewed way of looking at every situation he was in, his obsession with what he was doing- everything.

     

     

    I'm a search engine addict, so one of the first things I did after I saw the movie was google Willy Wonka, and the very first article I chanced across was The Science of Willy Wonka, and the very first paragraph was about Asperger's syndrome.  I was surprised that his behaviors had a name,  and that what was being said about Willy could apply to myself as well.  From there I started googling Asperger's syndrome, and ran into From Asperger geek to Aspie chic and You Might be an Aspie If- and Wired 9.12: Take The AQ Test.  I discovered through many more sites that there are two camps of thinking, one to cure autism, one to save it from annihilation.  I also found a number of personal sites created by people with Asperger's syndrome who were just fine with themselves, and it made me feel good to know I was not alone.  I see a psychologist now to help me learn how to better integrate myself and be less nervous about being social.

    I was so excited and enthralled that I couldn't help creating a myspace called My Wonka Bar, which seems to be pretty popular and attracts all kinds of people.  I filled it with youtubes, of which there are ~many~ focused around Willy Wonka.  Apparently, a LOT of people either identify with Willy Wonka, or love him because he's who he is, a unique individual with mesmerizing quirks.  The youtubes come and go, and the people come and go, but that site continues to remain active, even though I don't do much more with it and almost never contact anyone there.  The artwork is mine, and people ask me all the time if they can use it, especially the background.  I couldn't help it, I got so obsessed with rendering artwork I couldn't stop.

     

     

    This was a key breakthrough for me toward integrating my hidden self with my pretend self.  I was trained for years to 'perform', starting with being forced by my mom to behave normally, and eventually earning customer service awards on my jobs.  But no one ever knew the real me, and I felt like anyone who got close either blew me off with a laugh about being so weird or looked down on me for not being able to keep up with what is socially expected, like all the 'normals' being obsessed with reality shows on tv.

    Oddly, Willy is also how I came to recognize my asexuality.  I also didn't know there was such a thing until I found it being discussed about Willy Wonka.  Many people don't seem to understand what that is, thinking it means I don't like sex, or that I'm some kind of prude, or that I don't like feeling sexy once in awhile, or that there is something wrong with me.  But I'm finding there are a lot of people in this world who are naturally asexual, and although it can show up with Asperger's, it's not necessarily caused by it.  For me, it has more to do with my inability to trust people and my loathing of being touched than with sex itself.  (I was never sexually abused as a child, so this is not something I learned.)  No offense to anyone, but just thinking about being intimate sometimes makes me nauseated.  Fortunately for Scott, this doesn't apply to him.  I like him and I trust him.  If you are interesting in learning more about asexuality, this is a good place to start.  Asexual Visibility and Education Network

    I'm intrigued that a lot of people find Willy Wonka sexy.  Some of the youtubes are fairly suggestive, which is fine, but a little surprising to me because I just don't think like that.  However, I imagine the draw has a lot to do with (besides that really being Johnny Depp in there) Willy being so 'himself' that people find him new and exciting, and a challenge because he is so sealed off from intimate contact.  I've noticed this happens to me once in awhile, someone becoming intrigued with me and me having to eventually extricate myself from what weirdly becomes an almost sexual obsession with me.  I don't understand it at all, and partly because of that, I go out of my way to avoid friendships.  It seems the more I try not to get attention, the more I draw it.

    I think being aspie is becoming somewhat popular.  I don't know if that is good or bad.  I know I tend to like fringe people more than mainstream, and that characters with aspie-ish traits are used a lot in television.  I think that a segment of the population once grouped as oddballs is becoming a new kind of norm.  I think it's going to be savvy some day to be known as the aspie in the room.  I don't know if anyone will understand what I mean by this comparison, but it's kind of like the Geico cavemen looking at society around them, knowing they are different, having to deal with regular people not 'getting' them, but knowing they contributed just as much to society as anyone else.  You can almost insert the word 'autistic' in for caveman and get an idea of how we aspies sometimes feel when we are singled out and picked on.

     

    Since I 'came out', I am finding out that it's not that easy for other aspies to make the leap and be who they really are.  There is a lot of fear out there.  Some people want to cure their children before they become like us, which must mean we are mutated freaks.  Some aspies are so afraid of rejection and judgment that they don't speak up about how they really feel, and they keep hiding and pretending.  What I find amusing is how many people don't realize they probably *are* on the spectrum, even as they are thinking 'thank goodness I'm not like ~that~'.

    I LIKE people who are themselves.  I don't enjoy mass produced pink barbies and molded sweaty beefcakes.  When people feel they have to work really hard to change who they are so they can feel better about themselves, I find that sad.  I have always liked *me*, in spite of never finding the niche I fit into.  I would rather be in my head any day than someone else's perfect body.

    I think I have an edge on seeing the human condition.  I'm not caught up in the whims of feelings and reactions that I see other people go through.  I'm usually the first person in a room to come up with a solution to a problem, and I think it's because I see any situation I'm in like a big chess board.  I can see the consequences of a variety of actions to the nth generation.  Some people think that's like seeing the future.  Three people have called me a prophet, one has called me a wizard.  I don't think I have any special powers.  It's more like I don't have a lot of 'stuff' in the way.  I see action and reaction without being emotionally entangled.

    I think autistic people are born thinkers and problem solvers.  Some of them get their chance to shine, some are locked in a world of repetition and people trying to mold their behaviors because they don't understand that the little things are not always what is important.  What is important is enjoying the world we see around us, loving the people in front of us, and finding who we are and what we are good at.

    I hope they never cure what makes Willy Wonka who he is.

     

  • Boredom Survey

     

    whats your name spelt backwards?
    Akinaj.  That actually sounds cool, like something out of a WoW or Zelda vid game.

    What did you do last night?
    I fell more deeply in love with Michio Kaku.  I used to think Stephen Hawking was the coolest, because for a top physicist, he actually cared that the masses could understand what was in his head, and I loved him for it.  Kaku has gone the step further, making it an almost poetic journey into a love story, and kissed my thoughts with dreams of knowing everything possible.  Kaku marries physics and cosmology to the caress of word construction like no other. 

    The last thing you downloaded onto your computer?
    The youtube uploader.  Since I got my new camera, the megabytes really pile up onto the minutes.  I love the uploader, well worth the installation, and with the new camera, the digital quality has really zoomed up there.  I am quite pleased.

    Have you ever licked a 9 volt battery?
    I've seen a kid do this, as we were riding on a school bus.  He cried.  Everyone laughed.  I thought "morons" and kept to myself.

    Last time you swam in a pool?
    Sadly, I do not even own a suit any more.  I think I need a cute new suit.

    What are you wearing?
    I like the word 'housecoat'.  It's a coat you wear in a house when you get cold.  It's fuzzy and soft and warm, and looks super cool when I whip around in an action-packed move to catch something about to crash onto the floor.  It moves like Neo's long coat in The Matrix.

    How many cars have you owned?
    How many bombs have I worn out and retired...  haha.  Who cares.

    Type of music you dislike most?
    Apologies to anyone I inadvertently insult, but 'country' just about drives me up a wall, and 'rap' puts me into a coma.  There are some good songs contained within that I actually like very much, but as music types go, those two seem about as low on the 'lowest common denominator' chart as they come.  Again, apologies, nothing personal, it's just that it doesn't seem like you have to be terribly creative or knowledgeable to add to these categories of 'art'.  I think part of the problem is mass merchandising.  I think that kind of ruins them.

    Are you registered to vote?
    Yes, but I am choosy what voting opportunities I attend.  For instance, I ignored the last vote for school board, since my kids are no longer in the public school system.  I'm done with the local backstabbing, as it were.

    Do you have cable?
    I don't feed the pig.  I love my satellite dish.  It looks so cute on my deck.

    What kind of computer do you use?
    A really good one.  I can't wait until we have interactive computer implants put into our heads.

    Ever made a prank phone call?
    The best phone calls are the accidental ones.  I love it when people call my phone thinking they're getting someone else, and I can get them to talk to me, and when they finally realize I'm not who they wanted they get really mad and hang up on me.

    You like anyone right now?
    I'm liking Eddie Izzard a whole lot this last year.  I think he's the bomb.

    Would you go bungee jumping or sky diving?
    This is the 'Boredom Survey'.  If I would go do that stuff, I wouldn't be wasting my time doing a survey.

    Furthest place you ever traveled?
    Outside of this universe, but it was a thought experiment and I don't advise anyone to try this at home without supervision.

    What's your favorite comic strip?
    Calvin and Hobbes

    Do you know all the words to the national anthem?
    I never appreciated the line about the rockets red glare and bombs bursting in air giving proof through the night that the flag was still there until I was in my mid 30's and realized how awful that night must have truly been.

    Shower, morning or night?
    Aspergers Syndrome and Personal Hygiene  If you read nothing else about Asperger's, READ THIS.


    Best movie you've seen in the past month?
    I seem to be a bit movie-less in this month's memories.  I've seen a few crappy ones that Scott had on, but I refuse to stoop to rating which one was best.

    Favorite pizza toppings:
    Sausage and cheese.  But I'm really not that keen on pizza.  I think the best one I ever had really surprised me, because it was a thin crust super supreme, something I never would have ordered, but it was a mistake I didn't feel like arguing over, and wound up enjoying it immensely.

    Chips or popcorn? 
    If I must crunch, and I must, then I usually resort to dry cheerios.  But I dream of cheese popcorn from 
    Ozark Mountain Popcorn Co because they use real Kraft cheese, and that was the best popcorn I ever ate in my life.

    What cell phone provider do you have?
    Who cares?  It's not going to change your life to know this.

    Have you ever smoked peanut shells?
    *laughing hysterically at the idiocy of people actually going the length to try this*  You know, I've hung with a few people in the long ago past who were pretty serious about their experimentation, and this is about the stupidest thing I've ever heard.

    Have you ever been in a beauty pageant?
    I've taken second place in a beauty contest and won $10 a number of times.


    Orange Juice or apple?
    I like a whole bunch mixed together, like punch, with fizzy stuff.  Otherwise I'm not a juice drinker.

    Who were the last people you sat at lunch with?
    I think all these food questions are making me want a snack.  *running off to get a snack*


    favorite chocolate bar?
    I came back with hot tea and Hershey's kisses.  I'm not a big candy person.  These kisses are left over from Christmas.

    Who is your longest friend and how long?
    Scott, nearly 18 years.  He is the only person on this earth I have been completely myself with and not worried about it.

    Last time you ate a homegrown tomato?
    I'm sure my dad will bless me with an abundance, and I will enjoy much salssssa.

    Have you ever won a trophy?
    No, thank goodness.  Superficial recognition annoys me.


    Favorite arcade game?
    I sucked.  Didn't matter which one.  I have long since abandoned any hope of ever becoming a pinball wizard.

    Ever ordered from an infomercial?
    I can't believe people actually watch those.

    Sprite or 7-UP?
    I miss the old 7-up.  But it doesn't matter, I no longer drink pop.  The old commercials used to be really cool, though.

    Have you ever had to wear a uniform to school/work?
    I loathe cheap poly clothing.


    Last thing you bought at Walgreens?
    Z-pack.  I am apparently puny in my left ear or something.  Stabbing sort of stuff, you know the drill.

    Ever thrown up in public?
    I was born projectile vomiting with an accuracy of 3 feet, I am told.  I loathe puking.  I have refused to puke in over a decade.  Anti-spasmodics are my friend.

    Would you prefer being a millionaire or finding true love?
    I would prefer Scott bringing home some hot egg rolls after work.

    Do you believe in love at first sight?
    This happens when you see baby chicks and ducks.

    Did you have long hair as a young kid?
    I refused to shave my legs one month in middle school and my mom had a fit.

    What message is on your voicemail machine?
    I had so many complaints over the "I'm on vibrate" that I had to change it.

    Where would you like to go right now?
    I'm seriously thinking back to bed sounds good.

    Whats the name of your pet?
    I have 5 chickens and a duck right now.  If you want names, go to
    Duck Lords of the Sith

    What kind of back pack do you have, and what's in it?
    I have never personally owned a backpack.  Got clear through college without a backpack, imagine that.

    What do you think about most?
    The discontinuity of time.
     

  • aspie lovin'

     

    Scott once told me I don't have a romantic bone in my body.    I'm actually very proud of that.
     
    I have no idea how to explain that, except that 'romance' seems so cliche and sort of scheduled to me that I get the giggles and make fun of just about everything about it.
     
    I've never been caught up in a romantic moment, but I think that might be more that I haven't been swept away in my emotional whims in a culturally defined way.  Honestly, I see romance very differently than champagne and roses, walks in the park, kisses in the rain, holding hands on the beach, whatever.  Cliche.
     
    Romance is the sweetness of having been friends through it all.  Romance is the aching wait together through thick and thin while you wait for something scary like test results.  Romance is loving someone so much that you'll hold hands through a really bad terrible day, or month, or year, or even a decade, and still giggle about how stupid some of it was.
     
    Of course, I think his idea of romance was pretty weird, too.  Don't get me wrong, he's a really sweet guy and always there in a pinch and has never let me down, but...  He once saved money buying armloads of carnations about to be pitched out the back door of a flower shop, so I stood at the sink with a fever going through two bales of nasty decaying carnations so I could put a few in a vase.  I think the flower lady ripped him off.  But not to worry, I've also gotten some very excellent flowers.  It's just that he comes up with these weird surprises sometimes, and he really means well, so his feelings get kinda hurt if I make fun of them.  And I'm aspie, I can't tell you how hard it is not to laugh............
     
    Here is my very favorite story from our whole marriage, which will be 15 years in August.
     
    It had been a rough week, I felt yucky, the kids were underfoot (gradeschool and middle school), work was dumb for both of us, whatever we were snappy about wasn't making sense, and without thinking I shot off "Why don't you ever call me a term of endearment?  You've never called me honey or dear or darling or anything like that."  He asked me what I'd like to be called, which, as you ladies know, is ~bad~.  I huffed off and completely forgot all about it.  (I'd like to say to the people reading this who HAVEN'T been married five or ten years with kids, this is completely normal and sane behavior on both sides.)
     
    About a week later, it's dark, the kids are in bed, he's busy on me, and suddenly everything stops, I feel his mouth on my ear, and he whispers "Cupcake."  Then he got busy again.
     
    Cupcake?  Why did he say cupcake?  Did he *want* a cupcake?  Was I supposed to make him some cupcakes?  I know he ~likes~ cupcakes.  Is he hungry?
     
        You'll have to bless my little aspie heart, all this is flashing through my mind like a big puzzle and he has no idea I'm no longer in the moment, when it hit me-- THAT was the term of endearment!  And before I could stop myself I was stifling giggles at how unromantic and weird that was, and every time 'cupcake' went back through my head I was suffocating myself more and more trying not to laugh, but it crescendoed until I had to gasp, and next thing you know I'm laughing and laughing....
     
    Poor Scott.  He's in the middle of it, I'm laughing hysterically, and I can't even tell him why because I can barely breathe.  He stopped, turned on the light, and huffed off into the bathroom.  I gasped in after him, still doubled over in gales of laughter, wiping tears from my eyes, and he's so hurt he won't look at me or speak to me.  He avoided me for three days.  And he never, *ever* called me cupcake again.
     
    Years later, that memory still sends me into fits of giggles, no matter where I am or what I'm doing.  Scott knows the whole story now, he understands me.  He's probably not exactly ok with it, but it's such a little thing to him that he completely forgets all about it.  For me, however, that is a precious memory.  Two completely different minds meeting in a world of love.  That story is a very good picture of our whole marriage, all the crazy misunderstandings and goofy stumbling around that two people go through in a friendship that lasts for years.  I have Asperger's, he has Attention Deficit Disorder.  I cannot think of a more romantic memory than looking back over the years at how we learned how to laugh together over everything dumb between us.  Some day, if he goes first, people will wonder why I have to stifle a little giggle while I wipe my tears.
     
    It takes a brave man to keep making love in the face of a woman laughing.  Scott would really miss me laughing if I stopped and got all gooey and romantic on him.  I think we have more fun just laughing than any other couple I've met.  I can't help it, sex is just so weird, and stupid things pop into my head like how dumb frogs look doing it and stuff.
     
    Valentine's Day is funny because I don't get the least bit gooey, but Scott gets all sappy about his favorite candy and sits there lovingly eating those little hearts while he watches tv.  He'll buy himself candy and forget all about me.  Cracks me up.  I love watching him be himself.  I think some people miss seeing the unique stuff when they insist on romance.
     

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I've started transferring my survey posts over to Surveypalooza so people coming in from search engines on mobile devices will be able to see the surveys.

surveypalooza

Apologies for the missing vids, another upgrade during the server migration swept through like a scan sweeping through the Enterprise. I'll fix those later, kinda busy...

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